Lilly Diuble – 12 Year Old Girl Going Blind Has Great Vision to Help Others

At birth, Lilly Diuble was diagnosed with Usher Syndrome, a rare disease that causes people to go blind and deaf.  At 12 years old, Lilly still has some sight and hearing, but it is fading.

Yet, her condition has not led her into a world of pity, but one of giving and living life to the fullest each day.  Since she was in 2nd grade, Lilly has raised money for the Foundation Fighting Blindness as part of it’s annual VisionWalk. Her goal is to help researchers find a cure to her disease. Incredibly, to date she has raised over $150,000!

In addition, Lilly has been making it a priority to use her sight while she still has it.  She is traveling as much as she can to see famous sights and events before she loses her vision.

Lilly is an amazing role model and young lady. Watch her inspirational story below:

Additional Resources:


  • Visit the National Federation of the Blind website to learn more about Braille and how you can help support its use.
  • Read and watch more inspirational IMK stories about people dealing with blindness.

Topics for Discussion:


  • How does Lilly’s situation make you feel about your own sight
  • How would it feel to lose your sight after being able to see?
  • What character traits does Lilly show in facing her blindness?

Take Action:

Teacher Features:

  • Here is a link to a Critical Reading Skills worksheet that you can use for elementary school students.
  • Here is a link to a Critical Reading Skills worksheet that you can use for middle school students.




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